Internet Sources
The following websites provide additional sources of information on transplantation. This list is provided as a service and is not an endorsement of the information offered in these sites.
General Information
ORGANIZATION/WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
American Society of Transplantation
www.a-s-t.org
|
Educates patients about having an organ transplant and how to keep their new organs healthy.
|
236 Route 38 West, Suite 100
Moorestown, NJ 08057
856-608-1104
|
National Kidney Foundation
www.livingdonors.org
|
The National Kidney Foundation's online resource for living donation. Whether you are a living donor, potential donor, recipient, family member or friend, you'll find many different resources here.
|
30 East 33rd Street
New York, NY 10016
800-622-9010
|
Medscape
www.medscape.com
|
Online resources for better patient care; a multi-specialty medical information and education tool.
|
|
TransWeb
www.transweb.org
|
Features news and events, real people's experiences, the top 10 myths about donation, a donation quiz, and a large collection of questions and answers, as well as a reference area with everything from articles to videos.
|
|
United Network for Organ Sharing
www.unos.org
|
Manages the national transplant waiting list, matching donors to recipients; develops/monitors equitable policies; raises public awareness; maintains clinical transplant database.
|
1100 Boulders Parkway
Richmond, VA 23225-8770
888-TX INFO.1
888-894-6361
|
WebMD
www.webmd.com
|
Internet-based health care web; offers physicians, hospitals, third-party payers, and consumers a single point of access to information.
|
|
|
|
|
|
Kidney/Pancreas Information
ORGANIZATION/WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
The Diabetes Institute for Immunology and Transplantation
www.diabetesinstitute.org
|
Link to University of Minnesota information regarding diabetes and pancreas islets.
|
Department of Surgery
420 Delaware Street SE
Minneapolis, MN 55455
612-624-8402
|
American Association of Kidney Patients
www.aakp.org
|
Provides patient and public education and support.
|
3505 E. Frontage Rd, Ste 315
Tampa, FL 33607
800-749-2257
Fax 813-636-8122
Info@aakp.org
|
American Kidney Fund
www.akfinc.org
|
Provides limited grants to needy dialysis and kidney transplant patients and living kidney donors to help with the costs of transportation, medication and other treatment necessities.
|
6100 Executive Boulevard
Suite 1010
Rockville, MD 20852
800-638-8299
|
Insulin Free World Foundation
www.insulinfree.org
|
Works closely with the world’s clinical islet programs; provides contact information, as well as general information about islet transplantation and advances in research and treatments.
|
|
Juvenile Diabetes Foundation International
www.jdf.org
|
Diabetes research foundation – dedicated to finding a cure for diabetes and its complications, through research.
|
120 Wall Street
New York, NY 10005
800-JDF-CURE
212-785-9500
|
National Kidney Foundation
www.kidney.org
|
Voluntary health organization supporting research, educating the public and health care professionals, expanding services and resources, fund raising, shaping health policy.
|
30 East 33rd Street
New York, NY 10016
800-622-9010
|
National Kidney Foundation Living Donor Website
www.kidney.org/recips/donor
|
Public postings, message board, Q&A responses, chat room.
|
30 East 33rd Street
New York, NY 10016
800-622-9010
|
Life Options Rehabilitation Program
www.lifeoptions.org
|
Provides patients and professionals with information and links to kidney-related resources.
|
|
National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov
|
Link to health information on diabetes, with an emphasis on research.
|
Part of the National Institutes of Health, Bethesda, MD
|
Scientific Registry of Transplant Recipients National Data
www.ustransplant.org
|
University Renal Research Education in collaboration with Univ. of Mich.
|
Through web
|
Liver Information
ORGANIZATION/WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
American Liver Foundation
www.liverfoundation.org
|
Voluntary nonprofit health agency dedicated to preventing, treating and curing hepatitis and all liver diseases through research education, and support groups
|
75 Maiden Lane
Suite 603
New York, NY 10038
1-800-GO LIVER
1-800-465-4837
|
Lung Information
WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
Second Wind Lung Transplant Association, Inc
www.2ndwind.org
|
Support for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families.
|
Second Wind Lung Transplant Association, Inc.
300 S. Duncan Ave., Ste. 227
Clearwater, Florida 33755
Phone 888-855-9463 (toll free) or 727-442-0892, heering@2ndwind.org
|
Financial/Assistance Information
WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
American Organ Transplant Association
www.a-o-t-a.org
|
Provides fundraising assistance and reduced or free transportation to transplant patients and their families.
|
P.O. Box 441766
Houston, TX 77244
281-493-2047
|
Children’s Organ Transplant Association
www.cota.org
|
Works with adults and children to assist with transplant expenses.
|
800-366-2682
|
Fujisawa Patient Assistance Program
www.fujisawa.com
|
Helps patients with the costs of immuno-suppressant drugs.
|
Transplant Patient Information
Fujisawa Healthcare, Inc.
Three Parkway North
Deerfield, IL 60015-9566
800-477-6472
|
NeedyMeds Inc.
www.needymeds.com
|
Information on patient assistance programs, and data on other resources - Medicaid links, federal poverty guidelines, related news items, and more.
|
|
National Transplant Assistance Fund
www.transplantfund.org
|
Provides fundraising ideas and guidance for patients raising money for uninsured medically related expenses, challenge grants for eligible patients and educational information regarding organ/ tissue donation.
|
3475 West Chester Pike, Ste. 230
Newtown Square, PA 19073
Phone: 800-642-8399 or 610-353-9684
|
National Foundation for Transplants
www.transplants.org
|
Provides grants to offset the cost of immuno-suppressant drugs.
|
800-489-3863
|
Government Information
ORGANIZATION/WEBSITE
|
PURPOSE
|
ADDRESS/PHONE
|
Minnesota Department of Human Services
www.dhs.state.mn.us
|
Health care programs and services
|
|
US Dept. of Labor
www.dol.gov/esa/regs
|
Certification of health care provider for employees seeking protection under the Family and Medical Leave Act of 1993
|
File requires Acrobat Reader
|
Minnesota Comprehensive Health Association
www.mchamn.com
|
High-risk health insurance for Minnesota residents. Not a state agency.
|
M. C. H. A.
P.O. Box 64566
St. Paul, MN 55164
Call 800/531-6674 or 651/662-5290
|
Medicare
www.medicare.gov
|
Health insurance program for people 65 years of age and older, some disabled people under 65 years of age, and people with End-Stage Renal Disease (permanent kidney failure treated with dialysis or a transplant).
|
|
Social Security Website
www.ssa.gov
|
All publications available on line
|
|
Social Security Disability information
www.ssa.gov/dibplan/dqualify.htm
|
Learn what is required to qualify
|
|
US Dept. of Justice
www.usdoj.gov/crt/ada/workta.htm
|
Americans with Disabilities Act: Guide for people with disabilities seeking employment
|
|
|
Request Transplant Information Video/Kit
Watch a short video that describes the transplant information
video kit from Fujisawa Healthcare.
 Request
the Video |
|
 |
|
